My son has been diagnosed with bipolar disorder. He’s in his mid-twenties, so it’s the average time for onset of bipolar disorder. No family history that we know of, but if it was just two generations back, it probably wouldn’t have been talked about.

He had his first manic episode early in the year. He spent a brief time in in-patient treatment, followed by a period of out-patient treatment. During the out-patient treatment, his psychiatrist started to think the diagnosis was incorrect and she weaned him off his meds.

He has had another manic episode, and he’s back in the in-patient facility. Luckily he was able to get back into the same place he was in before, so they aren’t starting from zero. They started him back on different meds, and he’s much better much faster than the first time.

His fiancee was talking to a friend and someone overheard. The person who overheard said her mother was bipolar and she had to take her to the hospital six times, and she told his fiancee that she should break up with him.

The only experts I’ve spoken to have been the doctors in the crisis center, and I don’t know to what degree they are trying to sugar coat things to prevent us from giving up hope.

I’d rather know the reality.

If anyone has any personal experience they can share, I’d appreciate it. If anyone has any professional experience they can share, I’d appreciate that as well.

EDIT: Just wanted to add to this that we were able to visit him today, and he’s doing very well.

  • thesohoriots@lemmy.world
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    3 days ago

    Hi, Bipolar NOS (“not otherwise specified”) here, more down than up. It’s absolutely possible to do great. Like your son, early 20s onset, spent some time inpatient to get sorted out, and have been in consistent outpatient therapy and psychiatry treatment ever since. Completed a PhD program, got married, job market sucks but I’m still optimistic all things considered. I think consistency in treatment, lots of patience, and a good psychiatrist who you can trust are key.

    My spiel on the medication part, and some bipolar stigma: some people want to chase the mania, or get a little hypomania and think they’re doing better and don’t need the meds, or think the medication “stifles creativity,” and they give us a bad name. Think Kanye. For every up, there is a down. Not every up is good. The down is far worse. For me, it’s important to remember how bad things can get, because I don’t want that. Whatever side effects and months/years of tinkering with medications are worth it, to me, over losing my spouse, friends, family, or even my life.

    Yes, the process of trying medications sucks, but it’s entirely necessary. Also have a good plan for if things get suddenly worse, because they absolutely can — a dud batch of mood stabilizers from when your pharmacy switches manufacturers, for example.

    I could literally go on forever, but the tl;dr is that you can do great, just be prepared to put some time and effort into it. And never stop taking medications because you think/feel you’re doing better.

      • thesohoriots@lemmy.world
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        3 days ago

        I don’t have any real stats, but out of multiple meds per month since 2007, I had maybe two ever fail on me. The pharmacy fixed it immediately and made a note to only fill from a certain generic supplier.

        Also, while generics are technically made with the same active ingredient, the rest of the pill can make a difference. There’s one med that I’ve had from about 8 different manufacturers over the years and while half are good, there’s one that makes me extra tired, another that wears off early, etc.

    • NABDad@lemmy.worldOP
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      3 days ago

      Thank you for sharing!

      It’s interesting that you mention Kanye, because the first time they mentioned bipolar in the crisis center, he said he had been thinking about Kanye.