I’m not great with details, but I remember reading that many of us in the neurodiverse community struggle with sleep or energy levels.
Back in my early 20s, I went through the whole sleep clinic process. I was diagnosed with sleep apnea and mild narcolepsy. They prescribed me a full-face CPAP mask because my mouth doesn’t stay closed at night. That didn’t last long I dumped it after 2 months. I’m not a still sleeper — more like a rotisserie chicken — and the full mask just made me choke on my own drool. The doctors were frustrated and not very helpful. It felt like they expected me to control my body even while unconscious.
Now, over 10 years later, I’m going through the process again. Apparently, my body still isn’t getting enough oxygen during sleep, and it’s causing problems.
Still, I can’t help but wonder if the doctors are missing something — like autism as a potential root cause of sleep issues. In my neurodiverse friend group (both autistic and ADHD), I’m the only one not sleeping 12 or more hours a day. So now I’m left wondering what’s really going on — with me, and with them.
Do you have a heightened sensitivity to noise and touch when trying to sleep? I noticed I get that, lot of nightmares regarding bugs and my skin will crawl all night after one. I become every hair on my body and they all terrify me somehow.
Yep, allllll the time. I can’t sleep without white noise because I’ll fixate on things like cars passing or the a/c kicking on. I swear I can feel every hair on my head some nights and they’re somehow twisted the wrong direction. I have sensitive skin too, so I’ll randomly get hives/red itchy splotches that are maddening when trying to sleep. If I get actual bug bites I have to put bandaids over them so I don’t feel them rubbing against any fabric because I’ll scratch them bloody even when unconscious. Fun times.